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Author Topic:   Cancer Survivors
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


Message 226 of 304 (598009)
12-26-2010 4:46 PM
Reply to: Message 225 by Buzsaw
12-26-2010 4:22 PM


diet & health
Thanks Buz,

While in the USAF, I began to be apprised on good holistic nutrition, herbs, minerals and vitamins etc.

Since last year I've been on a diet of no sugar (including no HFCS) except what comes with fruits and veggies, no starch and no wheat (even gluten free). No prepared foods either. About the only grain I eat at present is gluten free oatmeal, with breakfast being either plain yogurt (greek style) and fruit or oatmeal and fruit.

Sometimes I mix peanut butter with the yogurt to add some protein, but the greek style has more protein than the regular style, and I eat a lot of (non beef) meats for lunch and dinners (with veggies), but no breads, no pastas (sigh).

I've lost over 40 lbs on this diet (plus my 1000 miles of bike riding this year), and feel better than the last several years. I've fallen a little off the diet for the holidays, and can tell that there is an immediate effect, so it's back to hard core for the new year.

This may not be holistic, but it is working for me at this moment in my life.

Enjoy.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

This message is a reply to:
 Message 225 by Buzsaw, posted 12-26-2010 4:22 PM Buzsaw has responded

Replies to this message:
 Message 227 by Buzsaw, posted 12-26-2010 11:43 PM RAZD has responded

  
Buzsaw
Inactive Member


Message 227 of 304 (598029)
12-26-2010 11:43 PM
Reply to: Message 226 by RAZD
12-26-2010 4:46 PM


Re: diet & health
It looks great to me. It's important to avoid hydrogenated peanut butter or ever partially hydrogenated. It's carcinogens cancer wise. You can get grinders and buy raw organic peanuts to grind. Better yet almonds are more nutritious.

I understand that the way they grow the non-organic peanuts involves a lot of bad stuff health wise.

I'm not a purist, except when I need to be for correcting some ailment. I drink a Rolling Rock Beer a day. The carbonation is not healthy. It used to be nitrate free. I hope it still is after the Busch folks acquired it.

Avocados are a great food. We use a lot of them, making different concoctions with them as a base.


BUZSAW B 4 U 2 C Y BUZ SAW.
The Immeasurable Present Eternally Extends the Infinite Past And Infinitely Consumes The Eternal Future.
Time Relates To What Is Temperal. What Is Eternal Is Timeless.
This message is a reply to:
 Message 226 by RAZD, posted 12-26-2010 4:46 PM RAZD has responded

Replies to this message:
 Message 228 by RAZD, posted 12-27-2010 8:34 AM Buzsaw has not yet responded

  
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


Message 228 of 304 (598032)
12-27-2010 8:34 AM
Reply to: Message 227 by Buzsaw
12-26-2010 11:43 PM


Re: diet & health
Thanks Buz.

It's important to avoid hydrogenated peanut butter or ever partially hydrogenated.

I buy either fresh ground (health stores) or those (few) brands that only list peanuts on the ingredients.

Better yet almonds are more nutritious.

Anf I hear walnuts are good for you as well. The best peanut butter I had was from a health food store in Victoria BC (no longer there, sigh) that allowed you to select the peanuts to grind, and I used spanish reds.

Enjoy.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

This message is a reply to:
 Message 227 by Buzsaw, posted 12-26-2010 11:43 PM Buzsaw has not yet responded

  
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


Message 229 of 304 (626436)
07-29-2011 11:42 AM


you know how I feel ...
... it's a long road, but each journey starts with one step.

http://xkcd.com/931/

april 2010 was the last time the "do loop" took me back to treatment ...

healthwise I feel good, so far, getting ready for the metric century (100km) bike ride next week.

sometimes it helps to focus on the road in front of you, and not how far down the road you will need to go


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

  
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


(2)
Message 230 of 304 (635863)
10-02-2011 11:37 AM


right on, my man
From Tom Batiuk and "Funky Winkerbean"

http://www.seattlepi.com/.../fun/Funky_Winkerbean/2011-10-02

FYI my last checkup was the best so far since the last chemo.

Thanks.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

Replies to this message:
 Message 231 by RAZD, posted 10-08-2011 5:30 PM RAZD has acknowledged this reply

  
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


(2)
Message 231 of 304 (636638)
10-08-2011 5:30 PM
Reply to: Message 230 by RAZD
10-02-2011 11:37 AM


Here's another one
http://www.calamitiesofnature.com/archive/?c=594

Calamities of Nature, by Tony Piro, 07Oct2011

Just a little bit of perspective, eh? (or should that be cognitive dissonance ... )

Enjoy.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

This message is a reply to:
 Message 230 by RAZD, posted 10-02-2011 11:37 AM RAZD has acknowledged this reply

  
fearandloathing
Member (Idle past 1758 days)
Posts: 990
From: Burlington, NC, USA
Joined: 02-24-2011


Message 232 of 304 (636648)
10-08-2011 7:01 PM


I have had a sore throat for several weeks. Was told I needed my tonsils removed.....now I wait for a result from a biopsy....I am scared.

"No sympathy for the devil; keep that in mind. Buy the ticket, take the ride...and if it occasionally gets a little heavier than what you had in mind, well...maybe chalk it off to forced conscious expansion: Tune in, freak out, get beaten."
Hunter S. Thompson

Ad astra per aspera

Nihil curo de ista tua stulta superstitione.


Replies to this message:
 Message 233 by RAZD, posted 10-08-2011 7:45 PM fearandloathing has acknowledged this reply

    
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


Message 233 of 304 (636651)
10-08-2011 7:45 PM
Reply to: Message 232 by fearandloathing
10-08-2011 7:01 PM


initial diagnosis issues
Hi fearandloathing,

.now I wait for a result from a biopsy....I am scared.

For cancer or bacterial infection? I'm assuming they want to rule out cancer as you posted here.

But yeah, I think that waiting to know is the toughest part - once you know it is easier, even when it comes back positive (as mine did), because then you start treatment, you have something to do, to concentrate on.

But I sincerely hope it comes back benign or negative.

Let me know, eh? You can PM me if you want.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

This message is a reply to:
 Message 232 by fearandloathing, posted 10-08-2011 7:01 PM fearandloathing has acknowledged this reply

  
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


(1)
Message 234 of 304 (656524)
03-19-2012 4:00 PM


Cancer's inevitable return again
Dear Family, Friends and Relations,

My cancer is back, there is no icing on the cake this year, even though this marks the longest interval between attacks. This cancer is still incurable, however every year we get a little closer to knocking it out.

This is the fifth round with the little buggers, and I'm not close to beaten yet.

There is a clinical study available this time around, with some leading edge drugs: Ofatumumab and Bortezomib. Ofatumumab is an antibody directed at a protein on the cell surface of B-cell non-Hodgkin lymphoma (what I have), and Bortezomib binds to a protein that is needed for cancer cell growth, so these are both "magic bullet" drugs directed at the cancerous cells. They have not been used in combination before, nor has Bortezomib been used on non-Hodgkin lymphoma (it is approved to use on Leukemia).

I am excited by the prospects of this treatment. Tomorrow I get a port installed, this is a device inserted just under the skin with a catheter to a vein, so that instead of getting a needle for the intravenous infusions they just poke into the head of the port. Wednesday I get a bone marrow biopsy as the last test for the study (sets the baseline). Next week I start the infusions with one a week for 4 weeks and then 1 every two months for the rest of the year, with followup testing for the next 5 years.

As far as I can see from the study information, I'm a perfect candidate for the study, and it looks like the prospects are good for a fairly rapid knock-down of the cancer cells.

Thank you for your support.

Paul.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

Replies to this message:
 Message 235 by Granny Magda, posted 03-19-2012 4:24 PM RAZD has responded
 Message 236 by Trixie, posted 03-19-2012 4:40 PM RAZD has acknowledged this reply
 Message 238 by Kairyu, posted 03-19-2012 4:59 PM RAZD has acknowledged this reply
 Message 239 by Panda, posted 03-19-2012 5:24 PM RAZD has acknowledged this reply
 Message 241 by Coyote, posted 03-19-2012 5:44 PM RAZD has acknowledged this reply
 Message 243 by Tanypteryx, posted 03-19-2012 11:20 PM RAZD has acknowledged this reply
 Message 245 by CosmicChimp, posted 03-20-2012 5:40 AM RAZD has acknowledged this reply
 Message 246 by onifre, posted 03-20-2012 9:46 AM RAZD has acknowledged this reply
 Message 247 by dronestar, posted 03-20-2012 10:08 AM RAZD has acknowledged this reply
 Message 248 by shadow71, posted 03-20-2012 3:13 PM RAZD has acknowledged this reply
 Message 252 by Percy, posted 04-01-2012 8:02 AM RAZD has acknowledged this reply
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Granny Magda
Member
Posts: 2353
From: UK
Joined: 11-12-2007
Member Rating: 2.5


(2)
Message 235 of 304 (656526)
03-19-2012 4:24 PM
Reply to: Message 234 by RAZD
03-19-2012 4:00 PM


Re: Cancer's inevitable return again
Hi RAZD,

Can't tell you how sorry I am to hear this, even though we knew it would come sooner or later. Here's hoping that these new drugs with crazy names can help you out. Seriously, Ofatumumab? I wouldn't give a D&D demon a name that bad. Maybe if it works they'll let you come up with a name that people can actually say.

You sound pretty positive about things though, I'm glad to see that. No way are you beaten yet!

All my best wishes to you and your family.

Mutate and Survive


This message is a reply to:
 Message 234 by RAZD, posted 03-19-2012 4:00 PM RAZD has responded

Replies to this message:
 Message 237 by RAZD, posted 03-19-2012 4:59 PM Granny Magda has acknowledged this reply

    
Trixie
Member (Idle past 1319 days)
Posts: 1011
From: Edinburgh
Joined: 01-03-2004


(2)
Message 236 of 304 (656528)
03-19-2012 4:40 PM
Reply to: Message 234 by RAZD
03-19-2012 4:00 PM


Re: Cancer's inevitable return again
As Granny said, what sorta names are those for drugs? Sorry to hear this and keeping everything crossed for you. Sending you virtual good luck vibes or as some of the horsey people say "jingling for you"!
This message is a reply to:
 Message 234 by RAZD, posted 03-19-2012 4:00 PM RAZD has acknowledged this reply

  
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


(1)
Message 237 of 304 (656531)
03-19-2012 4:59 PM
Reply to: Message 235 by Granny Magda
03-19-2012 4:24 PM


Re: Cancer's inevitable return again
Hi Granny Magda, Trixie, Jar etc

Thanks.

Seriously, Ofatumumab? I wouldn't give a D&D demon a name that bad.

Maybe the name alone will be enough to scare the little buggers ...

I think of them as Ofatwawho and Borgzombie,

Enjoy.

Edited by RAZD, : .


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

This message is a reply to:
 Message 235 by Granny Magda, posted 03-19-2012 4:24 PM Granny Magda has acknowledged this reply

Replies to this message:
 Message 240 by Perdition, posted 03-19-2012 5:39 PM RAZD has responded

  
Kairyu
Member (Idle past 1237 days)
Posts: 162
From: netherlands
Joined: 06-23-2010


(2)
Message 238 of 304 (656532)
03-19-2012 4:59 PM
Reply to: Message 234 by RAZD
03-19-2012 4:00 PM


Re: Cancer's inevitable return again
Good luck RAZD. I was't previously aware of your health problems(I've read the first post now), so for me it was a bit of a shock.. Get well soon!
This message is a reply to:
 Message 234 by RAZD, posted 03-19-2012 4:00 PM RAZD has acknowledged this reply

  
Panda
Member (Idle past 1326 days)
Posts: 2688
From: UK
Joined: 10-04-2010


(2)
Message 239 of 304 (656536)
03-19-2012 5:24 PM
Reply to: Message 234 by RAZD
03-19-2012 4:00 PM


Re: Cancer's inevitable return again
Good luck in kicking those little fuckers to the curb!

This also seems a good time to lay down the gauntlet...
http://www.worldcommunitygrid.org/...viewTeamMemberDetail.do

Come on you wimps!
5,355,875 is the score you need to beat!


Tradition and heritage are all dead people's baggage. Stop carrying it!

This message is a reply to:
 Message 234 by RAZD, posted 03-19-2012 4:00 PM RAZD has acknowledged this reply

  
Perdition
Member (Idle past 851 days)
Posts: 1593
From: Wisconsin
Joined: 05-15-2003


(2)
Message 240 of 304 (656537)
03-19-2012 5:39 PM
Reply to: Message 237 by RAZD
03-19-2012 4:59 PM


Re: Cancer's inevitable return again
Borgzombie

Now THAT'S a name fit to scare any malevolent cell.

Seriously though, good luck with the trial.


This message is a reply to:
 Message 237 by RAZD, posted 03-19-2012 4:59 PM RAZD has responded

Replies to this message:
 Message 242 by RAZD, posted 03-19-2012 5:51 PM Perdition has acknowledged this reply

    
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