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Author Topic:   Living with Cancer (from Cancer Survivors)
GDR
Member
Posts: 4365
From: Sidney, BC, Canada
Joined: 05-22-2005
Member Rating: 1.8


(1)
Message 91 of 157 (755893)
04-13-2015 1:26 AM
Reply to: Message 90 by NosyNed
04-13-2015 12:36 AM


Re: Vancouver
That's very kind of you Ned. I should be back and forth the same day. Also I have a son in Lynden if I need a place to stay. Thanks a lot.

He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God.

Micah 6:8


This message is a reply to:
 Message 90 by NosyNed, posted 04-13-2015 12:36 AM NosyNed has not yet responded

    
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


Message 92 of 157 (755926)
04-13-2015 2:22 PM
Reply to: Message 89 by GDR
04-12-2015 11:55 PM


Re: Update from what I know.
About 4 weeks ago I was found to have a olfactory neuroblastoma which is as it turns out is pretty rare.

Is that any relation to sticking your nose in other peoples business?

Don't remember if I've said before, we used to live in Victoria, our son was born there, and recently graduated with Master's in Architecture from UBC and is currently working in Vancouver. Lots of memories of walking trails on the Pacific side of the island and up and down the coast, skiing at Mt Washington (BC not MA) and sailing.

Should be time for the cherry trees to be blooming, although I've heard your climate this year has been very warm.

Hope for all the best, and hope that your sense of smell (and taste) remains as sharp as ever.

Thanks


we are limited in our ability to understand
by our ability to understand
RebelAmerican☆Zen☯Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 89 by GDR, posted 04-12-2015 11:55 PM GDR has responded

Replies to this message:
 Message 93 by GDR, posted 04-13-2015 2:34 PM RAZD has acknowledged this reply

  
GDR
Member
Posts: 4365
From: Sidney, BC, Canada
Joined: 05-22-2005
Member Rating: 1.8


(1)
Message 93 of 157 (755927)
04-13-2015 2:34 PM
Reply to: Message 92 by RAZD
04-13-2015 2:22 PM


Re: Update from what I know.
RAZD writes:

Is that any relation to sticking your nose in other peoples business?

A little more rarely than how often this form of cancer occurs.

RAZD writes:

Don't remember if I've said before, we used to live in Victoria, our son was born there, and recently graduated with Master's in Architecture from UBC and is currently working in Vancouver. Lots of memories of walking trails on the Pacific side of the island and up and down the coast, skiing at Mt Washington (BC not MA) and sailing.

Should be time for the cherry trees to be blooming, although I've heard your climate this year has been very warm.

Hope for all the best, and hope that your sense of smell (and taste) remains as sharp as ever.

It has been a mild winter. No snow at all other than a few flakes a couple of times. The blossoms are all coming off the trees now. It is a beautiful place to live. I've been out here for about 20 years after growing up in Alberta and living 15 years in Montreal and 8 in the Toronto area, so this place is quite a treat.

From my understanding there is an olfactory nerve on both sides so I have probably already gradually lost the sense of smell and taste on the one side but if the radiation is done well I should keep it on the other side. There is also a risk to the optic nerve on the left side with both the surgery and the radiation.

However, as I said I am so fortunate compared to you and Asgara. Also I have had a wonderful 71 years so I have no complaints regardless of what happens. Frankly, my concern is for others in my life if this whole thing goes south.

Cheers


He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God.

Micah 6:8


This message is a reply to:
 Message 92 by RAZD, posted 04-13-2015 2:22 PM RAZD has acknowledged this reply

    
AZPaul3
Member
Posts: 3428
From: Phoenix
Joined: 11-06-2006


(3)
Message 94 of 157 (755944)
04-13-2015 9:28 PM
Reply to: Message 89 by GDR
04-12-2015 11:55 PM


Re: Update from what I know.
GDR, If you don't mind letting us know when you're scheduled to go in I would like to think on you throughout the day. It's kind of a prayer thing without the prayer thing. I would directly beam pleasant thoughts of Häagen-Dazs Chocolate ice cream at you.


This message is a reply to:
 Message 89 by GDR, posted 04-12-2015 11:55 PM GDR has responded

Replies to this message:
 Message 95 by GDR, posted 04-13-2015 11:41 PM AZPaul3 has acknowledged this reply

  
GDR
Member
Posts: 4365
From: Sidney, BC, Canada
Joined: 05-22-2005
Member Rating: 1.8


(3)
Message 95 of 157 (755947)
04-13-2015 11:41 PM
Reply to: Message 94 by AZPaul3
04-13-2015 9:28 PM


Re: Update from what I know.
AZPaul3 writes:

GDR, If you don't mind letting us know when you're scheduled to go in I would like to think on you throughout the day. It's kind of a prayer thing without the prayer thing. I would directly beam pleasant thoughts of Häagen-Dazs Chocolate ice cream at you.

You are indeed a man of prayer. Thank you so much. I ferry over to Vancouver on Wednesday to meet with the surgeon and then presumably I'll get a date for the actual surgery then. The surgery done endoscopically should be pretty straight forward except that they have to deal with the olfactory nerve and I don't know how much that might complicate things. It is pretty close to the optical nerve so there is some risk there which is also true with the radiation. However, as I said earlier I like my chances.

Thanks again for the prayers. God hears them all and even rewards with Häagen-Dazs Chocolate ice cream on occasion.


He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God.

Micah 6:8


This message is a reply to:
 Message 94 by AZPaul3, posted 04-13-2015 9:28 PM AZPaul3 has acknowledged this reply

    
GDR
Member
Posts: 4365
From: Sidney, BC, Canada
Joined: 05-22-2005
Member Rating: 1.8


(4)
Message 96 of 157 (757431)
05-08-2015 6:49 PM


Surgery
Hello All

I am now home as of yesterday after my stay in the Vancouver General.

Friday, May 1, started out well when I was told that the results of the PET Scan had come back and that the cancer had not gone to the lymph nodes which had been a concern.

The ten hour procedure went very well so the first part of the journey has been a howling success. Essentially they removed an aggressive tumour from nasal passage and sinus cavity which had then gone through the cribriform plate and slightly into the brain. The type of cancer was a rare one called "olfactory neuroblastoma".

They removed about a gram of the brain and took a 2” diameter hole out of the cribrifome plate. They then replaced the part they removed with skin taken from a roughly 10” slice from my left thigh and some additional tissues from inside the nasal Cavity. All of this is being done endoscopically. The two surgeons were incredible with over 30 years of university between the two of them. I could not have had better surgeons. I have permanently lost my sense of smell but I still seem to have a reasonable ability to taste things, but it is definitely diminished. As the tumour was right against the eye there was concern that I might lose the left eye but there was no damage done to it at all.

Besides the tumour they took a little more around the edges and found no cancer in these margins so that is very encouraging. and as the surgeon said the surgery went very well.

It is possible that they got all the cancer, but as there is still a good possibility that there are individual cancer cells remaining so I will start program of radiation likely in early June although that hasn't been established. That may actually be the toughest part of the journey.

So all is well and God is Good.


He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God.

Micah 6:8


Replies to this message:
 Message 97 by RAZD, posted 05-08-2015 7:40 PM GDR has responded
 Message 98 by Tanypteryx, posted 05-08-2015 8:18 PM GDR has not yet responded
 Message 99 by AZPaul3, posted 05-09-2015 4:44 AM GDR has not yet responded
 Message 100 by Faith, posted 05-09-2015 6:40 PM GDR has not yet responded

    
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


(2)
Message 97 of 157 (757435)
05-08-2015 7:40 PM
Reply to: Message 96 by GDR
05-08-2015 6:49 PM


Re: Surgery
Glad you are doing well.

With radiation on the horizon you may be at the beginning of a harsh journey in unpleasant side effects: I wish you well, and I wish you strength. And marijuana oils etc to combat the nausea and loss of appetite (augmented by loss of taste appeal).

There are a number of studies showing positive results from marijuana and tumor reduction, especially in the brain.

... the cancer had not gone to the lymph nodes which had been a concern. ...

A major plus, as that is the major path to spreading tumor throughout the body.

Soit bon et sage et va souvent à l'église (iirc) as words of advice from a warrior.

Enjoy


we are limited in our ability to understand
by our ability to understand
RebelAmerican☆Zen☯Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 96 by GDR, posted 05-08-2015 6:49 PM GDR has responded

Replies to this message:
 Message 101 by GDR, posted 05-10-2015 12:36 PM RAZD has acknowledged this reply
 Message 102 by GDR, posted 05-11-2015 11:44 AM RAZD has acknowledged this reply

  
Tanypteryx
Member
Posts: 1592
From: Oregon, USA
Joined: 08-27-2006
Member Rating: 5.0


(2)
Message 98 of 157 (757438)
05-08-2015 8:18 PM
Reply to: Message 96 by GDR
05-08-2015 6:49 PM


Re: Surgery
It sounds like mostly good news. I am glad to hear that!

What if Eleanor Roosevelt had wings? -- Monty Python

One important characteristic of a theory is that is has survived repeated attempts to falsify it. Contrary to your understanding, all available evidence confirms it. --Subbie

If evolution is shown to be false, it will be at the hands of things that are true, not made up. --percy


This message is a reply to:
 Message 96 by GDR, posted 05-08-2015 6:49 PM GDR has not yet responded

    
AZPaul3
Member
Posts: 3428
From: Phoenix
Joined: 11-06-2006


(1)
Message 99 of 157 (757452)
05-09-2015 4:44 AM
Reply to: Message 96 by GDR
05-08-2015 6:49 PM


Re: Surgery
It is possible that they got all the cancer...

Here's hoping so, GDR.


This message is a reply to:
 Message 96 by GDR, posted 05-08-2015 6:49 PM GDR has not yet responded

  
Faith
Member
Posts: 26702
From: Nevada, USA
Joined: 10-06-2001
Member Rating: 1.1


(1)
Message 100 of 157 (757507)
05-09-2015 6:40 PM
Reply to: Message 96 by GDR
05-08-2015 6:49 PM


Re: Surgery
Congratulations on good news so far, and best wishes for the harder part to come.
This message is a reply to:
 Message 96 by GDR, posted 05-08-2015 6:49 PM GDR has not yet responded

    
GDR
Member
Posts: 4365
From: Sidney, BC, Canada
Joined: 05-22-2005
Member Rating: 1.8


(2)
Message 101 of 157 (757549)
05-10-2015 12:36 PM
Reply to: Message 97 by RAZD
05-08-2015 7:40 PM


Re: Surgery
RAZD writes:

There are a number of studies showing positive results from marijuana and tumor reduction, especially in the brain.

Thanks RAZD

My tumour was essentially a tumour that grew from the nasal passage into the brain, but I still think that your suggestion might be really helpful

I am going to ask the Cancer Agency about that and look for other info on my own. I also have a close friend going through cancer issues as well who is looking into this.

I found this other study which is interesting but I don't think would help in my specific case. It concerns the effect of PPI's on head and neck cancers but I don't think that the type of cancer they talk about is broad enough to include mine.

http://www.aacr.org/Newsroom/Pages/News-Release-Detail.aspx

Cheers


He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God.

Micah 6:8


This message is a reply to:
 Message 97 by RAZD, posted 05-08-2015 7:40 PM RAZD has acknowledged this reply

    
GDR
Member
Posts: 4365
From: Sidney, BC, Canada
Joined: 05-22-2005
Member Rating: 1.8


Message 102 of 157 (757604)
05-11-2015 11:44 AM
Reply to: Message 97 by RAZD
05-08-2015 7:40 PM


Re: Surgery
While I was in surgery a family member of another cancer patient gave my wife this site to look at. I have never heard of it before. Do you, or does any of you other bright lights no anything about this way of dealing with cancer.

Here is the site that was given to my wife.

http://www.thedcasite.com/

Thanks


He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God.

Micah 6:8


This message is a reply to:
 Message 97 by RAZD, posted 05-08-2015 7:40 PM RAZD has acknowledged this reply

Replies to this message:
 Message 103 by AZPaul3, posted 05-12-2015 7:02 AM GDR has responded

    
AZPaul3
Member
Posts: 3428
From: Phoenix
Joined: 11-06-2006


(4)
Message 103 of 157 (757683)
05-12-2015 7:02 AM
Reply to: Message 102 by GDR
05-11-2015 11:44 AM


Re: Surgery
Be very, very cautious here, GDR. DCA has become the stuff of charlatans.

There is some research that indicates that DCA may slow the growth of some cancers but the studies are far from definitive. So, the charlatans have latched on to the desperate fears of cancer victims to push DCA remedies that are questionable at best and can be down right dangerous.

Perform your due diligence via google avoiding those sites trying to sell the stuff. Look at the American Cancer Society stuff and other sites to research.

DO NOT buy this stuff off the web!
DO NOT self medicate!
DO NOT fall for the hype and rosy rhetoric!
and most important of all...
DO NOT do anything before talking to your doctors!


This message is a reply to:
 Message 102 by GDR, posted 05-11-2015 11:44 AM GDR has responded

Replies to this message:
 Message 104 by GDR, posted 05-12-2015 11:44 AM AZPaul3 has responded

  
GDR
Member
Posts: 4365
From: Sidney, BC, Canada
Joined: 05-22-2005
Member Rating: 1.8


(1)
Message 104 of 157 (757712)
05-12-2015 11:44 AM
Reply to: Message 103 by AZPaul3
05-12-2015 7:02 AM


Re: Surgery
Thanks so much AZ. I enjoy this site for so many reasons but it is such a great place to go to get invaluable information such as this.

I would have gone through the cancer agency to see about this stuff but you have at the very least saved me the embarrassment.


He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God.

Micah 6:8


This message is a reply to:
 Message 103 by AZPaul3, posted 05-12-2015 7:02 AM AZPaul3 has responded

Replies to this message:
 Message 105 by RAZD, posted 05-12-2015 2:23 PM GDR has not yet responded
 Message 106 by AZPaul3, posted 05-12-2015 4:50 PM GDR has not yet responded

    
RAZD
Member
Posts: 19295
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.3


Message 105 of 157 (757720)
05-12-2015 2:23 PM
Reply to: Message 104 by GDR
05-12-2015 11:44 AM


Re: Surgery
Yesss ... well I have not heard of DCA, but I would look at peer reviewed articles in medical journals and look at how well they fit your situation.

Talk if over with your oncologist -- they should be aware of the research if they track the field at all (and the good ones do: mine was onboard for using weed to counter nausea but he cautioned\advised to use oral consumption over inhaling as there are viruses etc on plants that you don't want in your lungs.

Enjoy

Edited by RAZD, : dca noit dcl


we are limited in our ability to understand
by our ability to understand
RebelAmerican☆Zen☯Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 104 by GDR, posted 05-12-2015 11:44 AM GDR has not yet responded

Replies to this message:
 Message 107 by AZPaul3, posted 05-12-2015 4:55 PM RAZD has acknowledged this reply

  
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