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Member (Idle past 1731 days) Posts: 20714 From: the other end of the sidewalk Joined: |
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Author | Topic: Living with Cancer (from Cancer Survivors) | |||||||||||||||||||||||||||||||||||||||||||||
GDR Member Posts: 6223 From: Sidney, BC, Canada Joined:
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That's very kind of you Ned. I should be back and forth the same day. Also I have a son in Lynden if I need a place to stay. Thanks a lot.
He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God. Micah 6:8
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RAZD Member (Idle past 1731 days) Posts: 20714 From: the other end of the sidewalk Joined: |
About 4 weeks ago I was found to have a olfactory neuroblastoma which is as it turns out is pretty rare. Is that any relation to sticking your nose in other peoples business? ![]() Don't remember if I've said before, we used to live in Victoria, our son was born there, and recently graduated with Master's in Architecture from UBC and is currently working in Vancouver. Lots of memories of walking trails on the Pacific side of the island and up and down the coast, skiing at Mt Washington (BC not MA) and sailing. Should be time for the cherry trees to be blooming, although I've heard your climate this year has been very warm. Hope for all the best, and hope that your sense of smell (and taste) remains as sharp as ever. Thanksby our ability to understand Rebel☮American☆Zen☯Deist ... to learn ... to think ... to live ... to laugh ... to share. Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)
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GDR Member Posts: 6223 From: Sidney, BC, Canada Joined:
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RAZD writes: A little more rarely than how often this form of cancer occurs. Is that any relation to sticking your nose in other peoples business?![]() RAZD writes: Don't remember if I've said before, we used to live in Victoria, our son was born there, and recently graduated with Master's in Architecture from UBC and is currently working in Vancouver. Lots of memories of walking trails on the Pacific side of the island and up and down the coast, skiing at Mt Washington (BC not MA) and sailing. Should be time for the cherry trees to be blooming, although I've heard your climate this year has been very warm. Hope for all the best, and hope that your sense of smell (and taste) remains as sharp as ever. It has been a mild winter. No snow at all other than a few flakes a couple of times. The blossoms are all coming off the trees now. It is a beautiful place to live. I've been out here for about 20 years after growing up in Alberta and living 15 years in Montreal and 8 in the Toronto area, so this place is quite a treat. ![]() From my understanding there is an olfactory nerve on both sides so I have probably already gradually lost the sense of smell and taste on the one side but if the radiation is done well I should keep it on the other side. There is also a risk to the optic nerve on the left side with both the surgery and the radiation. However, as I said I am so fortunate compared to you and Asgara. Also I have had a wonderful 71 years so I have no complaints regardless of what happens. Frankly, my concern is for others in my life if this whole thing goes south. CheersHe has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God. Micah 6:8
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AZPaul3 Member Posts: 8716 From: Phoenix Joined: Member Rating: 4.9
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GDR, If you don't mind letting us know when you're scheduled to go in I would like to think on you throughout the day. It's kind of a prayer thing without the prayer thing. I would directly beam pleasant thoughts of Hagen-Dazs Chocolate ice cream at you.
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GDR Member Posts: 6223 From: Sidney, BC, Canada Joined:
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AZPaul3 writes: GDR, If you don't mind letting us know when you're scheduled to go in I would like to think on you throughout the day. It's kind of a prayer thing without the prayer thing. I would directly beam pleasant thoughts of Hagen-Dazs Chocolate ice cream at you. You are indeed a man of prayer. ![]() Thanks again for the prayers. God hears them all and even rewards with Hagen-Dazs Chocolate ice cream on occasion. ![]() He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God. Micah 6:8
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GDR Member Posts: 6223 From: Sidney, BC, Canada Joined:
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Hello All
I am now home as of yesterday after my stay in the Vancouver General. Friday, May 1, started out well when I was told that the results of the PET Scan had come back and that the cancer had not gone to the lymph nodes which had been a concern. The ten hour procedure went very well so the first part of the journey has been a howling success. Essentially they removed an aggressive tumour from nasal passage and sinus cavity which had then gone through the cribriform plate and slightly into the brain. The type of cancer was a rare one called "olfactory neuroblastoma". They removed about a gram of the brain and took a 2 diameter hole out of the cribrifome plate. They then replaced the part they removed with skin taken from a roughly 10 slice from my left thigh and some additional tissues from inside the nasal Cavity. All of this is being done endoscopically. The two surgeons were incredible with over 30 years of university between the two of them. I could not have had better surgeons. I have permanently lost my sense of smell but I still seem to have a reasonable ability to taste things, but it is definitely diminished. As the tumour was right against the eye there was concern that I might lose the left eye but there was no damage done to it at all. Besides the tumour they took a little more around the edges and found no cancer in these margins so that is very encouraging. and as the surgeon said the surgery went very well. It is possible that they got all the cancer, but as there is still a good possibility that there are individual cancer cells remaining so I will start program of radiation likely in early June although that hasn't been established. That may actually be the toughest part of the journey. So all is well and God is Good.He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God. Micah 6:8
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RAZD Member (Idle past 1731 days) Posts: 20714 From: the other end of the sidewalk Joined:
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Glad you are doing well.
With radiation on the horizon you may be at the beginning of a harsh journey in unpleasant side effects: I wish you well, and I wish you strength. And marijuana oils etc to combat the nausea and loss of appetite (augmented by loss of taste appeal). There are a number of studies showing positive results from marijuana and tumor reduction, especially in the brain.
... the cancer had not gone to the lymph nodes which had been a concern. ... A major plus, as that is the major path to spreading tumor throughout the body. Soit bon et sage et va souvent l'glise (iirc) as words of advice from a warrior. Enjoyby our ability to understand Rebel☮American☆Zen☯Deist ... to learn ... to think ... to live ... to laugh ... to share. Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)
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Tanypteryx Member Posts: 4597 From: Oregon, USA Joined:
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It sounds like mostly good news. I am glad to hear that!
What if Eleanor Roosevelt had wings? -- Monty Python One important characteristic of a theory is that is has survived repeated attempts to falsify it. Contrary to your understanding, all available evidence confirms it. --Subbie If evolution is shown to be false, it will be at the hands of things that are true, not made up. --percy
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AZPaul3 Member Posts: 8716 From: Phoenix Joined: Member Rating: 4.9
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It is possible that they got all the cancer... Here's hoping so, GDR.
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Faith ![]() Suspended Member (Idle past 1770 days) Posts: 35298 From: Nevada, USA Joined:
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Congratulations on good news so far, and best wishes for the harder part to come.
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GDR Member Posts: 6223 From: Sidney, BC, Canada Joined:
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RAZD writes: There are a number of studies showing positive results from marijuana and tumor reduction, especially in the brain. Thanks RAZD My tumour was essentially a tumour that grew from the nasal passage into the brain, but I still think that your suggestion might be really helpful I am going to ask the Cancer Agency about that and look for other info on my own. I also have a close friend going through cancer issues as well who is looking into this. I found this other study which is interesting but I don't think would help in my specific case. It concerns the effect of PPI's on head and neck cancers but I don't think that the type of cancer they talk about is broad enough to include mine. http://www.aacr.org/Newsroom/Pages/News-Release-Detail.aspx CheersHe has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God. Micah 6:8
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GDR Member Posts: 6223 From: Sidney, BC, Canada Joined: |
While I was in surgery a family member of another cancer patient gave my wife this site to look at. I have never heard of it before. Do you, or does any of you other bright lights no anything about this way of dealing with cancer.
Here is the site that was given to my wife. The DCA Site - Updating You on DCA and Cancer - Dichloroacetic acid and Dichloroacetate ThanksHe has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God. Micah 6:8
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AZPaul3 Member Posts: 8716 From: Phoenix Joined: Member Rating: 4.9
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Be very, very cautious here, GDR. DCA has become the stuff of charlatans.
There is some research that indicates that DCA may slow the growth of some cancers but the studies are far from definitive. So, the charlatans have latched on to the desperate fears of cancer victims to push DCA remedies that are questionable at best and can be down right dangerous. Perform your due diligence via google avoiding those sites trying to sell the stuff. Look at the American Cancer Society stuff and other sites to research. DO NOT buy this stuff off the web!DO NOT self medicate! DO NOT fall for the hype and rosy rhetoric! and most important of all... DO NOT do anything before talking to your doctors!
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GDR Member Posts: 6223 From: Sidney, BC, Canada Joined:
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Thanks so much AZ. I enjoy this site for so many reasons but it is such a great place to go to get invaluable information such as this.
I would have gone through the cancer agency to see about this stuff but you have at the very least saved me the embarrassment. ![]() He has told you, O man, what is good ; And what does the LORD require of you But to do justice, to love kindness, And to walk humbly with your God. Micah 6:8
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RAZD Member (Idle past 1731 days) Posts: 20714 From: the other end of the sidewalk Joined: |
Yesss ... well I have not heard of DCA, but I would look at peer reviewed articles in medical journals and look at how well they fit your situation.
Talk if over with your oncologist -- they should be aware of the research if they track the field at all (and the good ones do: mine was onboard for using weed to counter nausea but he cautioned\advised to use oral consumption over inhaling as there are viruses etc on plants that you don't want in your lungs. Enjoy Edited by RAZD, : dca noit dclby our ability to understand Rebel☮American☆Zen☯Deist ... to learn ... to think ... to live ... to laugh ... to share. Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)
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