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Author Topic:   Living with Cancer (from Cancer Survivors)
RAZD
Member
Posts: 20154
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 4.1


(7)
Message 211 of 229 (849751)
03-20-2019 9:11 AM
Reply to: Message 207 by RAZD
02-16-2019 1:30 PM


Re: Update - intermission
Starting pills again. Had my 2^3x3^2 birthday during the intermission, which was nice.

I also started a fund raiser for The Leukemia & Lymphoma Society

quote:
For my birthday this year, I'm asking for donations to The Leukemia & Lymphoma Society. I've chosen this nonprofit because their mission means a lot to me, and I hope you'll consider contributing as a way to celebrate with me. Every little bit will help me reach my goal. I've included information about The Leukemia & Lymphoma Society below.

The LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.


You can access on facebook here
there's a donate button on the page.

Thanks


we are limited in our ability to understand
by our ability to understand
RebelAmerican☆Zen☯Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 207 by RAZD, posted 02-16-2019 1:30 PM RAZD has acknowledged this reply

Replies to this message:
 Message 212 by Tanypteryx, posted 03-20-2019 2:23 PM RAZD has acknowledged this reply
 Message 213 by ramoss, posted 03-20-2019 7:25 PM RAZD has acknowledged this reply
 Message 214 by AZPaul3, posted 03-20-2019 8:57 PM RAZD has acknowledged this reply
 Message 215 by Theodoric, posted 03-21-2019 9:13 PM RAZD has acknowledged this reply

  
Tanypteryx
Member
Posts: 2322
From: Oregon, USA
Joined: 08-27-2006
Member Rating: 7.2


(1)
Message 212 of 229 (849764)
03-20-2019 2:23 PM
Reply to: Message 211 by RAZD
03-20-2019 9:11 AM


Re: Update - intermission
Happy birthday!

I'm glad to see that things are improving for you.


What if Eleanor Roosevelt had wings? -- Monty Python

One important characteristic of a theory is that is has survived repeated attempts to falsify it. Contrary to your understanding, all available evidence confirms it. --Subbie

If evolution is shown to be false, it will be at the hands of things that are true, not made up. --percy

The reason that we have the scientific method is because common sense isn't reliable. -- Taq


This message is a reply to:
 Message 211 by RAZD, posted 03-20-2019 9:11 AM RAZD has acknowledged this reply

    
ramoss
Member
Posts: 3122
Joined: 08-11-2004
Member Rating: 3.4


(1)
Message 213 of 229 (849768)
03-20-2019 7:25 PM
Reply to: Message 211 by RAZD
03-20-2019 9:11 AM


Re: Update - intermission
Done. Hope things work out so this can be done a few more dozen times.

This message is a reply to:
 Message 211 by RAZD, posted 03-20-2019 9:11 AM RAZD has acknowledged this reply

  
AZPaul3
Member
Posts: 4633
From: Phoenix
Joined: 11-06-2006
Member Rating: 4.4


(1)
Message 214 of 229 (849774)
03-20-2019 8:57 PM
Reply to: Message 211 by RAZD
03-20-2019 9:11 AM


Re: Update - intermission
Ninja proteins! They like you.

Eschew obfuscation. Habituate elucidation.

This message is a reply to:
 Message 211 by RAZD, posted 03-20-2019 9:11 AM RAZD has acknowledged this reply

  
Theodoric
Member
Posts: 6654
From: Northwest, WI, USA
Joined: 08-15-2005
Member Rating: 4.1


(2)
Message 215 of 229 (849805)
03-21-2019 9:13 PM
Reply to: Message 211 by RAZD
03-20-2019 9:11 AM


Re: Update - intermission
My honor to donate.

Facts don't lie or have an agenda. Facts are just facts

"God did it" is not an argument. It is an excuse for intellectual laziness.

If your viewpoint has merits and facts to back it up why would you have to lie?


This message is a reply to:
 Message 211 by RAZD, posted 03-20-2019 9:11 AM RAZD has acknowledged this reply

    
Thugpreacha
Member
Posts: 12966
From: Denver,Colorado USA
Joined: 12-30-2003
Member Rating: 1.2


Message 216 of 229 (850086)
03-31-2019 7:04 AM
Reply to: Message 207 by RAZD
02-16-2019 1:30 PM


Re: Update - intermission
RAZD writes:

My current treatment involves two therapies, one a pill I take at home the other an infusion done at hospital.

The pill I take one a day for 21 days, then 7 days off (the intermission), then repeat. It hammers me, and by day 21 I have almost no energy to do much more than read small bits.

Time sure flies! Here it is the end of March, nearly April. What phase of the 21 day/7 day cycle are you in? If you dont answer or if your answer is brief, I will have an idea, but why not rate your strength on a scale of 1 (weak) to 10 (strong) so we know. The weaker you are, the more we will pick up the slack. You are a member of TEAM EvC and we are in a giant game of tug of war. If you tell us how you feel, we will know how hard we must pull.

We know that we must win, for this is no mere game. Love ya, RAZD,


Chance as a real force is a myth. It has no basis in reality and no place in scientific inquiry. For science and philosophy to continue to advance in knowledge, chance must be demythologized once and for all. ~RC Sproul
"A lie can travel half way around the world while the truth is putting on its shoes." ~Mark Twain "
~"If that's not sufficient for you go soak your head."~Faith

You can "get answers" by watching the ducks. That doesn't mean the answers are coming from them.~Ringo

Subjectivism may very well undermine Christianity.
In the same way that "allowing people to choose what they want to be when they grow up" undermines communism.
~Stile


This message is a reply to:
 Message 207 by RAZD, posted 02-16-2019 1:30 PM RAZD has responded

Replies to this message:
 Message 217 by RAZD, posted 04-08-2019 12:33 PM Thugpreacha has acknowledged this reply

  
RAZD
Member
Posts: 20154
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 4.1


(6)
Message 217 of 229 (850452)
04-08-2019 12:33 PM
Reply to: Message 216 by Thugpreacha
03-31-2019 7:04 AM


Re: Update - intermission
Time sure flies! Here it is the end of March, nearly April. What phase of the 21 day/7 day cycle are you in?

The 21 days of pills concludes tonight.

... but why not rate your strength on a scale of 1 (weak) to 10 (strong) so we know. ...

2. I lost 50 lbs in the last year, most of it muscle mass due to lying in bed so much. Home physical therapy has ended. I graduated to get outside therapy, and have chosen the local Y. First time on stationary bike I managed to ride 1 virtual mile (vm), and have increased that to 4 vms. I try to go 3 times a week. I want to be in shape to ride my cycle buddies annual birthday ride -- 70 miles -- in August.

I'll keep you posted.

Enjoy


we are limited in our ability to understand
by our ability to understand
RebelAmerican☆Zen☯Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 216 by Thugpreacha, posted 03-31-2019 7:04 AM Thugpreacha has acknowledged this reply

  
RAZD
Member
Posts: 20154
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 4.1


(15)
Message 218 of 229 (855683)
06-21-2019 3:35 PM


update on ninja task force
So I now have the results from 2 days of extensive testing to see about being admitted to the CAR-T treatment study.

The bad news is that I did not qualify for two reasons. The first is that my platelet count was too low (600 instead of 750 minimum). This study is now no longer open (I was the last person to be considered). This means waiting 2-3 years for it to become approved for use.

The second reason is also the good news. The PET scan found no active sites to gather cancerous cells from to make the DNA targeted T-cells to attack just the cancer cells.

In other words, at this point I am in remission, and continuing the current pill treatment should maintain that condition.

This does not mean the cancer is cured, just that it is not killing me at this time. It has taken a year to get here.

This also means it is a good time for another stem cell transplant, with more likelihood of success. 

I will be meeting with my oncologist to discuss moving forward.

Paul, aka RAZD

Sent from my Samsung Galaxy smartphone.

Edited by RAZD, : .


we are limited in our ability to understand
by our ability to understand
RebelAmerican☆Zen☯Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

Replies to this message:
 Message 219 by Tanypteryx, posted 06-21-2019 3:40 PM RAZD has acknowledged this reply
 Message 220 by AZPaul3, posted 06-22-2019 5:53 AM RAZD has acknowledged this reply
 Message 221 by ringo, posted 06-22-2019 11:58 AM RAZD has acknowledged this reply

  
Tanypteryx
Member
Posts: 2322
From: Oregon, USA
Joined: 08-27-2006
Member Rating: 7.2


(1)
Message 219 of 229 (855685)
06-21-2019 3:40 PM
Reply to: Message 218 by RAZD
06-21-2019 3:35 PM


Re: update on ninja task force
The good news is GOOD news! Hooray!

What if Eleanor Roosevelt had wings? -- Monty Python

One important characteristic of a theory is that is has survived repeated attempts to falsify it. Contrary to your understanding, all available evidence confirms it. --Subbie

If evolution is shown to be false, it will be at the hands of things that are true, not made up. --percy

The reason that we have the scientific method is because common sense isn't reliable. -- Taq


This message is a reply to:
 Message 218 by RAZD, posted 06-21-2019 3:35 PM RAZD has acknowledged this reply

    
AZPaul3
Member
Posts: 4633
From: Phoenix
Joined: 11-06-2006
Member Rating: 4.4


(1)
Message 220 of 229 (855698)
06-22-2019 5:53 AM
Reply to: Message 218 by RAZD
06-21-2019 3:35 PM


Re: update on ninja task force
Never doubt the power of the Ninja Proteins!

Eschew obfuscation. Habituate elucidation.

This message is a reply to:
 Message 218 by RAZD, posted 06-21-2019 3:35 PM RAZD has acknowledged this reply

  
ringo
Member
Posts: 17399
From: frozen wasteland
Joined: 03-23-2005
Member Rating: 2.6


(2)
Message 221 of 229 (855723)
06-22-2019 11:58 AM
Reply to: Message 218 by RAZD
06-21-2019 3:35 PM


Re: update on ninja task force
"I'm sorry, sir, but you don't qualify for our study. You're too healthy."

All that are in Hell, choose it. -- CS Lewis
That's just egregiously stupid. -- ringo

This message is a reply to:
 Message 218 by RAZD, posted 06-21-2019 3:35 PM RAZD has acknowledged this reply

  
RAZD
Member
Posts: 20154
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 4.1


Message 222 of 229 (864114)
10-07-2019 1:07 AM


Calling all survivors
quote:
Welcome to Survivor Views, from the American Cancer Society Cancer Action Network (ACS CAN). This survey is meant for cancer survivors who are over the age of 18 and live in the United States.

Purpose of this study: You have been invited to join the Survivor Views research study. This study involves of a set of surveys between June 2019 and July 2020. These surveys will help us better understand your thoughts and experiences as a cancer survivor. The surveys may ask questions about access to care, cost of treatment, different types of cancer treatments, pain management, and healthy living.

Process: Today’s survey should take less than 10 minutes to complete. You may take the survey using a computer or a tablet/phone connected to the internet. After you finish this survey, you will be invited to take surveys approximately every other month through July 2020. All surveys will be online and will be short, no more than 10 minutes.

Risks: Taking these surveys poses no risk to you.


Fairly innocuous

Enjoy


we are limited in our ability to understand
by our ability to understand
Rebel•American•Zen•Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

Replies to this message:
 Message 223 by Thugpreacha, posted 10-07-2019 2:38 AM RAZD has responded
 Message 227 by GDR, posted 10-07-2019 11:05 AM RAZD has responded

  
Thugpreacha
Member
Posts: 12966
From: Denver,Colorado USA
Joined: 12-30-2003
Member Rating: 1.2


Message 223 of 229 (864116)
10-07-2019 2:38 AM
Reply to: Message 222 by RAZD
10-07-2019 1:07 AM


Re: Calling all survivors
Still planning on riding the bike again? I feel that you believe so, and just that fact feels good to me too!

Chance as a real force is a myth. It has no basis in reality and no place in scientific inquiry. For science and philosophy to continue to advance in knowledge, chance must be demythologized once and for all. ~RC Sproul
"A lie can travel half way around the world while the truth is putting on its shoes." ~Mark Twain "
~"If that's not sufficient for you go soak your head."~Faith

You can "get answers" by watching the ducks. That doesn't mean the answers are coming from them.~Ringo

“As the fear of God is the beginning of wisdom, so the denial of God is the height of foolishness.”
? R.C. Sproul, Essential Truths of the Christian Faith


This message is a reply to:
 Message 222 by RAZD, posted 10-07-2019 1:07 AM RAZD has responded

Replies to this message:
 Message 224 by RAZD, posted 10-07-2019 8:27 AM Thugpreacha has responded

  
RAZD
Member
Posts: 20154
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 4.1


Message 224 of 229 (864126)
10-07-2019 8:27 AM
Reply to: Message 223 by Thugpreacha
10-07-2019 2:38 AM


Re: Calling all survivors
Still planning on riding the bike again? ...

Been riding some. My longest this year so far is 12 miles. Better than the 4 miles last year. The YMCA here has a LiveStrong program for cancer survivors, and it has helped be gain strength and endurance. Mostly with stationary equipment and weight training. Endurance is my main issue at the moment. Last year with all the hospitalization etc I lost 50 lbs and now have 25 back. A lot of that is/was muscle mass (especially in the legs -- when I first tried on my bike shorts they fell off, now they stay put). Have to take it easy for a bit, as I just had hernia surgery.

Next week we're off to Portland OR to see the kids and their new house, and to visit with old friends who are now professional house sitters and just happen to be in Portland. Then train into Canada and through the Canadian Rockies (Jasper park). Should get some good walks in.

Enjoy


we are limited in our ability to understand
by our ability to understand
Rebel•American•Zen•Deist
... to learn ... to think ... to live ... to laugh ...
to share.


Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click)

This message is a reply to:
 Message 223 by Thugpreacha, posted 10-07-2019 2:38 AM Thugpreacha has responded

Replies to this message:
 Message 225 by Thugpreacha, posted 10-07-2019 8:36 AM RAZD has acknowledged this reply
 Message 226 by Thugpreacha, posted 10-07-2019 8:43 AM RAZD has acknowledged this reply

  
Thugpreacha
Member
Posts: 12966
From: Denver,Colorado USA
Joined: 12-30-2003
Member Rating: 1.2


(1)
Message 225 of 229 (864128)
10-07-2019 8:36 AM
Reply to: Message 224 by RAZD
10-07-2019 8:27 AM


Re: Calling all survivors
Baby steps.

Though not as health-challenged as you (you are inspiring, by the way) I find that at age 60, with sleep apnea, diabetes, and complications beginning to take their toll on my body that I have to keep fighting and planning on getting stronger.

Doctors and medical science have taught me a lot, but I study different theories and seem convinced that the Low Carb approach is the best way to fight this diabetes thing. Of course, we discussed this two years ago...and if anything I'm more battle-scarred and weary than I was two, five, ten, and twenty years ago. But the reality is that the present is all that I have to work with.

I now know that family is more important than I ever thought it was. It's not just about me... it's about them and my importance to them. My faith, if anything, is stronger yet still stubborn...as you may note in my other recent topics. I don't have the internal strength to be a Deist, nevermind a Rebel American Zen one!

But I never let religion or lack of religion fully define people. Nor do I value them based on their weaknesses and "demons". It is always a learning process.

Did you ever do a Belief Statement back in the earlier days of EvC? Let me look... ahhhh here it is!

Edited by Thugpreacha, : No reason given.


Chance as a real force is a myth. It has no basis in reality and no place in scientific inquiry. For science and philosophy to continue to advance in knowledge, chance must be demythologized once and for all. ~RC Sproul
"A lie can travel half way around the world while the truth is putting on its shoes." ~Mark Twain "
~"If that's not sufficient for you go soak your head."~Faith

You can "get answers" by watching the ducks. That doesn't mean the answers are coming from them.~Ringo

“As the fear of God is the beginning of wisdom, so the denial of God is the height of foolishness.”
? R.C. Sproul, Essential Truths of the Christian Faith


This message is a reply to:
 Message 224 by RAZD, posted 10-07-2019 8:27 AM RAZD has acknowledged this reply

  
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