Starting pills again. Had my 2^3x3^2 birthday during the intermission, which was nice.
I also started a fund raiser for The Leukemia & Lymphoma Society
quote:For my birthday this year, I'm asking for donations to The Leukemia & Lymphoma Society. I've chosen this nonprofit because their mission means a lot to me, and I hope you'll consider contributing as a way to celebrate with me. Every little bit will help me reach my goal. I've included information about The Leukemia & Lymphoma Society below.
The LLS mission: Cure leukemia, lymphoma, Hodgkinâ€™s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.
You can access on facebook here there's a donate button on the page.
My current treatment involves two therapies, one a pill I take at home the other an infusion done at hospital.
The pill I take one a day for 21 days, then 7 days off (the intermission), then repeat. It hammers me, and by day 21 I have almost no energy to do much more than read small bits.
Time sure flies! Here it is the end of March, nearly April. What phase of the 21 day/7 day cycle are you in? If you dont answer or if your answer is brief, I will have an idea, but why not rate your strength on a scale of 1 (weak) to 10 (strong) so we know. The weaker you are, the more we will pick up the slack. You are a member of TEAM EvC and we are in a giant game of tug of war. If you tell us how you feel, we will know how hard we must pull.
We know that we must win, for this is no mere game. Love ya, RAZD,
Chance as a real force is a myth. It has no basis in reality and no place in scientific inquiry. For science and philosophy to continue to advance in knowledge, chance must be demythologized once and for all. ~RC Sproul "A lie can travel half way around the world while the truth is putting on its shoes." ~Mark Twain " ~"If that's not sufficient for you go soak your head."~Faith
You can "get answers" by watching the ducks. That doesn't mean the answers are coming from them.~Ringo
Subjectivism may very well undermine Christianity. In the same way that "allowing people to choose what they want to be when they grow up" undermines communism.~Stile
Time sure flies! Here it is the end of March, nearly April. What phase of the 21 day/7 day cycle are you in?
The 21 days of pills concludes tonight.
... but why not rate your strength on a scale of 1 (weak) to 10 (strong) so we know. ...
2. I lost 50 lbs in the last year, most of it muscle mass due to lying in bed so much. Home physical therapy has ended. I graduated to get outside therapy, and have chosen the local Y. First time on stationary bike I managed to ride 1 virtual mile (vm), and have increased that to 4 vms. I try to go 3 times a week. I want to be in shape to ride my cycle buddies annual birthday ride -- 70 miles -- in August.
So I now have the results from 2 days of extensive testing to see about being admitted to the CAR-T treatment study.
The bad news is that I did not qualify for two reasons. The first is that my platelet count was too low (600 instead of 750 minimum). This study is now no longer open (I was the last person to be considered). This means waiting 2-3 years for it to become approved for use.
The second reason is also the good news. The PET scan found no active sites to gather cancerous cells from to make the DNA targeted T-cells to attack just the cancer cells.
In other words, at this point I am in remission, and continuing the current pill treatment should maintain that condition.
This does not mean the cancer is cured, just that it is not killing me at this time. It has taken a year to get here.
This also means it is a good time for another stem cell transplant, with more likelihood of success.Â
I will be meeting with my oncologist to discuss moving forward.