Living with Cancer (from Cancer Survivors)

Starting pills again. Had my 2^{^3}x3^{^2} birthday during the intermission, which was nice.I also started a fund raiser for The Leukemia & Lymphoma Society

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For my birthday this year, I'm asking for donations to The Leukemia & Lymphoma Society. I've chosen this nonprofit because their mission means a lot to me, and I hope you'll consider contributing as a way to celebrate with me. Every little bit will help me reach my goal. I've included information about The Leukemia & Lymphoma Society below.

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The LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.

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You can access on facebook here
there's a donate button on the page.Thanks

Happy birthday!I'm glad to see that things are improving for you.

Done. Hope things work out so this can be done a few more dozen times.

Ninja proteins! They like you.

My honor to donate.

Time sure flies! Here it is the end of March, nearly April. What phase of the 21 day/7 day cycle are you in? If you dont answer or if your answer is brief, I will have an idea, but why not rate your strength on a scale of 1 (weak) to 10 (strong) so we know. The weaker you are, the more we will pick up the slack. You are a member of TEAM EvC and we are in a giant game of tug of war. If you tell us how you feel, we will know how hard we must pull. We know that we must win, for this is no mere game. Love ya, RAZD,

The 21 days of pills concludes tonight. 2. I lost 50 lbs in the last year, most of it muscle mass due to lying in bed so much. Home physical therapy has ended. I graduated to get outside therapy, and have chosen the local Y. First time on stationary bike I managed to ride 1 virtual mile (vm), and have increased that to 4 vms. I try to go 3 times a week. I want to be in shape to ride my cycle buddies annual birthday ride -- 70 miles -- in August.I'll keep you posted.Enjoy

So I now have the results from 2 days of extensive testing to see about being admitted to the CAR-T treatment study.The bad news is that I did not qualify for two reasons. The first is that my platelet count was too low (600 instead of 750 minimum). This study is now no longer open (I was the last person to be considered). This means waiting 2-3 years for it to become approved for use.The second reason is also the good news. The PET scan found no active sites to gather cancerous cells from to make the DNA targeted T-cells to attack just the cancer cells.In other words, at this point I am in remission, and continuing the current pill treatment should maintain that condition.This does not mean the cancer is cured, just that it is not killing me at this time. It has taken a year to get here.This also means it is a good time for another stem cell transplant, with more likelihood of success.I will be meeting with my oncologist to discuss moving forward.Paul, aka RAZDSent from my Samsung Galaxy smartphone.Edited by RAZD, : .

The good news is GOOD news! Hooray!

Never doubt the power of the Ninja Proteins!

"I'm sorry, sir, but you don't qualify for our study. You're too healthy."

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Welcome to Survivor Views, from the American Cancer Society Cancer Action Network (ACS CAN). This survey is meant for cancer survivors who are over the age of 18 and live in the United States.

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Purpose of this study: You have been invited to join the Survivor Views research study. This study involves of a set of surveys between June 2019 and July 2020. These surveys will help us better understand your thoughts and experiences as a cancer survivor. The surveys may ask questions about access to care, cost of treatment, different types of cancer treatments, pain management, and healthy living.

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Process: Today’s survey should take less than 10 minutes to complete. You may take the survey using a computer or a tablet/phone connected to the internet. After you finish this survey, you will be invited to take surveys approximately every other month through July 2020. All surveys will be online and will be short, no more than 10 minutes.

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Risks: Taking these surveys poses no risk to you.

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Fairly innocuousEnjoy

Still planning on riding the bike again? I feel that you believe so, and just that fact feels good to me too!

Been riding some. My longest this year so far is 12 miles. Better than the 4 miles last year. The YMCA here has a LiveStrong program for cancer survivors, and it has helped be gain strength and endurance. Mostly with stationary equipment and weight training. Endurance is my main issue at the moment. Last year with all the hospitalization etc I lost 50 lbs and now have 25 back. A lot of that is/was muscle mass (especially in the legs -- when I first tried on my bike shorts they fell off, now they stay put). Have to take it easy for a bit, as I just had hernia surgery.Next week we're off to Portland OR to see the kids and their new house, and to visit with old friends who are now professional house sitters and just happen to be in Portland. Then train into Canada and through the Canadian Rockies (Jasper park). Should get some good walks in.Enjoy

Baby steps.Though not as health-challenged as you (you are inspiring, by the way) I find that at age 60, with sleep apnea, diabetes, and complications beginning to take their toll on my body that I have to keep fighting and planning on getting stronger.Doctors and medical science have taught me a lot, but I study different theories and seem convinced that the Low Carb approach is the best way to fight this diabetes thing. Of course, we discussed this two years ago...and if anything I'm more battle-scarred and weary than I was two, five, ten, and twenty years ago. But the reality is that the present is all that I have to work with.I now know that family is more important than I ever thought it was. It's not just about me... it's about them and my importance to them. My faith, if anything, is stronger yet still stubborn...as you may note in my other recent topics. I don't have the internal strength to be a Deist, nevermind a Rebel American Zen one! But I never let religion or lack of religion fully define people. Nor do I value them based on their weaknesses and "demons". It is always a learning process.Did you ever do a Belief Statement back in the earlier days of EvC? Let me look... ahhhh here it is! Edited by Thugpreacha, : No reason given.