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Author Topic:   Cancer Survivors
Tanypteryx
Member
Posts: 1586
From: Oregon, USA
Joined: 08-27-2006
Member Rating: 4.2


(2)
Message 286 of 304 (670248)
08-10-2012 8:47 PM


Wishing you guys the best
Asgara & RAZD

I'm hoping it all goes well for you both!

I just recently dodged the bullet myself. Not cancer this time, but a close call.

take care!


What if Eleanor Roosevelt had wings? -- Monty Python

One important characteristic of a theory is that is has survived repeated attempts to falsify it. Contrary to your understanding, all available evidence confirms it. --Subbie

If evolution is shown to be false, it will be at the hands of things that are true, not made up. --percy


    
onifre
Member (Idle past 507 days)
Posts: 4854
From: Dark Side of the Moon
Joined: 02-20-2008


Message 287 of 304 (670305)
08-12-2012 11:27 AM
Reply to: Message 284 by RAZD
08-09-2012 6:51 AM


Hemp Oil
and finally resorted to medical marijuana (RI lets you register to use it with a doctors approval) and it cleared up. I was amazed.

I was going to suggest this, as you guys are experiencing nausea and need to eat. May I also suggest you don't take it old school smoking style. If you can, make edibles. Avoid the smoke, and it's a lot smoother and calming, and lasts in your system way longer. Plus, you're killing two birds as you are also eating at the same time as using the marijuana.

Also, I believe you can use hemp oil as well. I know there is scepticism surrounding it's ability to cure cancer, but I think as a treatment it works well. It does give you the same effects as marijuana, and you can legally order it online. It's easier to make edibles with it too.

Good luck in your recovery to both of you.

- Oni

Edited by onifre, : No reason given.


This message is a reply to:
 Message 284 by RAZD, posted 08-09-2012 6:51 AM RAZD has responded

Replies to this message:
 Message 288 by RAZD, posted 08-12-2012 12:03 PM onifre has responded
 Message 290 by Asgara, posted 08-12-2012 12:14 PM onifre has responded

    
RAZD
Member
Posts: 19074
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.6


Message 288 of 304 (670308)
08-12-2012 12:03 PM
Reply to: Message 287 by onifre
08-12-2012 11:27 AM


Re: Hemp Oil
Thanks onifre,

... May I also suggest you don't take it old school smoking style. If you can, make edibles. Avoid the smoke, and it's a lot smoother and calming, and lasts in your system way longer. Plus, you're killing to birds as you are also eating at the same time as using the marijuana. ...

Problem I had was everything was coming back up - a single Tums was back so fast that it was still sweet and minty. Smoke was the only option.

I now have a vapor-blunt that heats the weed to 300* to vaporize the active and all you inhale is enhanced air, no heat, no smoke or ash. Pretty cool.

Enjoy


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 287 by onifre, posted 08-12-2012 11:27 AM onifre has responded

Replies to this message:
 Message 289 by onifre, posted 08-12-2012 12:13 PM RAZD has acknowledged this reply
 Message 293 by New Cat's Eye, posted 08-13-2012 5:31 PM RAZD has acknowledged this reply

  
onifre
Member (Idle past 507 days)
Posts: 4854
From: Dark Side of the Moon
Joined: 02-20-2008


(2)
Message 289 of 304 (670309)
08-12-2012 12:13 PM
Reply to: Message 288 by RAZD
08-12-2012 12:03 PM


Re: Hemp Oil
Smoke was the only option.

Cool, glad you're using a vaporizer then.

Just remember, the weed you heat up is still good for edibles, if you choose to make them. Maybe some for xong?

Using a vaporizer doesn't remove the oil, so the weed has two functions: smoke then use it for munchies

I now have a vapor-blunt that heats the weed to 300* to vaporize the active and all you inhale is enhanced air, no heat, no smoke or ash. Pretty cool.

Very, very cool. Glad to hear it's helping. I'm a big supporter of legalized medicinal marijuana, if you couldn't tell.

- Oni


This message is a reply to:
 Message 288 by RAZD, posted 08-12-2012 12:03 PM RAZD has acknowledged this reply

    
Asgara
Member
Posts: 1783
From: Wisconsin, USA
Joined: 05-10-2003


Message 290 of 304 (670310)
08-12-2012 12:14 PM
Reply to: Message 287 by onifre
08-12-2012 11:27 AM


Re: Hemp Oil
Unfortunately, I live in one of the states that does NOT allow medical marijuana use. Hemp oil is something I will definitely look into.

Asgara
"I was so much older then, I'm younger than that now"

Save lives! Click here!
Join the World Community Grid with Team EvC!

http://apaininmyass.wordpress.com/


This message is a reply to:
 Message 287 by onifre, posted 08-12-2012 11:27 AM onifre has responded

Replies to this message:
 Message 291 by onifre, posted 08-12-2012 12:26 PM Asgara has not yet responded

    
onifre
Member (Idle past 507 days)
Posts: 4854
From: Dark Side of the Moon
Joined: 02-20-2008


Message 291 of 304 (670312)
08-12-2012 12:26 PM
Reply to: Message 290 by Asgara
08-12-2012 12:14 PM


Re: Hemp Oil
Unfortunately, I live in one of the states that does NOT allow medical marijuana use.

Then it's the college campus purchase for you.

Hemp oil is something I will definitely look into.

There's a documentary on youtube about it's effects and help in the treatment of cancer. Also, Tommy Chong (I know, I know) claims it has helped him with his fight against prostate cancer.

You can google all that if you care to.

- Oni


This message is a reply to:
 Message 290 by Asgara, posted 08-12-2012 12:14 PM Asgara has not yet responded

    
New Cat's Eye
Member
Posts: 11761
From: near St. Louis
Joined: 01-27-2005
Member Rating: 1.7


(1)
Message 292 of 304 (670383)
08-13-2012 5:27 PM
Reply to: Message 284 by RAZD
08-09-2012 6:51 AM


Re: Cancer Survivor's Club
and finally resorted to medical marijuana (RI lets you register to use it with a doctors approval) and it cleared up. I was amazed.

I'm more than happy to give up illegal use to let you all benefit from it. I've always thought it to be fantastic, and do miss it now that I've sold out. Its great that your state will let you partake. Enjoy!


This message is a reply to:
 Message 284 by RAZD, posted 08-09-2012 6:51 AM RAZD has acknowledged this reply

  
New Cat's Eye
Member
Posts: 11761
From: near St. Louis
Joined: 01-27-2005
Member Rating: 1.7


(1)
Message 293 of 304 (670384)
08-13-2012 5:31 PM
Reply to: Message 288 by RAZD
08-12-2012 12:03 PM


Re: Hemp Oil
I now have a vapor-blunt that heats the weed to 300* to vaporize the active

You sure that ain't too hot? IIRC, the vaporizing temperature is less than that. And you don't need to burn any more than thit.

all you inhale is enhanced air, no heat, no smoke or ash. Pretty cool.

Its the coolest way I've ever seen in my life. Congrats for that. Again, Enjoy!


This message is a reply to:
 Message 288 by RAZD, posted 08-12-2012 12:03 PM RAZD has acknowledged this reply

  
RAZD
Member
Posts: 19074
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.6


(5)
Message 294 of 304 (671068)
08-22-2012 5:54 AM


general update ... not too bad, considering
Well things are going a little better this round (#2 in the series of 4 day long treatments), as I've been able to preemptively hold off the constipation and nausea by diet and attacking the first signs. This is day 4 now, but I have some other stuff to get before they let me out (sometime tomorrow). Having brownies in the backpack helped, but so did the figs ...

Mentally my sudoku score times are a little up, so I know I have some chemo-brain effect going on, and I've been trying to keep my posts short and to the point as a result.

Hair loss seems to have halted with some bare patches in funny places.

Overall better than round 1 was.

Hope you are doing well Asgara.

Enjoy.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

Replies to this message:
 Message 295 by Asgara, posted 08-22-2012 10:21 PM RAZD has responded

  
Asgara
Member
Posts: 1783
From: Wisconsin, USA
Joined: 05-10-2003


(2)
Message 295 of 304 (671196)
08-22-2012 10:21 PM
Reply to: Message 294 by RAZD
08-22-2012 5:54 AM


Re: general update ... not too bad, considering
Great to hear RAZD.

Today was start of my second treatment. My WBC and RBC were low so they reduced my oxaliplatin dose and got permission to get me a shot of Neulasta after my treatment is done. This will help my bone marrow to work a bit harder. Hope I don't get the bone aches they say can come with this shot.

I've had a few small side effects with this treatment. First bite syndrome and some cold sensitivity. All of my issues are due to the oxaliplatin so I'm not unhappy they reduced the dose. I also still off the Avastin as my incision is still not fully closed up on the surface..


Asgara
"I was so much older then, I'm younger than that now"

Save lives! Click here!
Join the World Community Grid with Team EvC!

http://apaininmyass.wordpress.com/


This message is a reply to:
 Message 294 by RAZD, posted 08-22-2012 5:54 AM RAZD has responded

Replies to this message:
 Message 296 by RAZD, posted 08-23-2012 10:28 AM Asgara has not yet responded

    
RAZD
Member
Posts: 19074
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.6


(3)
Message 296 of 304 (671220)
08-23-2012 10:28 AM
Reply to: Message 295 by Asgara
08-22-2012 10:21 PM


Re: general update ... not too bad, considering
Good to hear Asgara, keep strong.

I have had Neulasta before and will be getting some today and tomorrow for same reasons, to boost my new white cell growth. I have not experienced any severe symptoms from it beyond the initial injection.

I am now waiting to be discharged.

Enjoy.


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 295 by Asgara, posted 08-22-2012 10:21 PM Asgara has not yet responded

Replies to this message:
 Message 297 by RAZD, posted 09-07-2012 11:02 PM RAZD has acknowledged this reply

  
RAZD
Member
Posts: 19074
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.6


(3)
Message 297 of 304 (672429)
09-07-2012 11:02 PM
Reply to: Message 296 by RAZD
08-23-2012 10:28 AM


another general update ... & information for ASGARA ... & what to look forward to
Hi all,

I am just starting (day 1 of) round 3 of this program of chemotherapy. The first day is fairly benign, but the side effects of nausea, constipation and fatigue build up day by day, so that by day 5 it is at the maximum. In the first week following this also reaches another peak the second or third day after treatment ceases, as some drugs that counter these effects are purged while the others that cause the effects are still there, being flushed out at a slower rate. The second week following is where the effects have stopped and energy improves ... peaking just in time to start again.

Thus you can expect my posting to taper off and stop for a couple days before reviving ... in synchrony with the tides treatment cycles.

You can also expect that the quality of my posts may follow a similar pattern (possibly with a slight delay) due the effect known as chemobrain.

Not surprisingly, I firmly believe that long term chemobrain was at least partly responsible for my mother's dementia, and the loss of memory that appeared shortly after treatment for breast cancer, especially the second time, when she had some bad side effects of a treatment.

These drugs are toxic (in some cases the nurses wear hazmat protection when handling them), with the older ones being generally toxic to all cells and the new ones becoming more and more targeted to specific cells and proteins.

This prospect scares\alarms\disturbs me, and it is certainly one of the reasons I have become increasingly interested in cognitive functioning (dysfunction, dissonance etc ).

In previous discussion with my oncologist, he noted that it normally is mild and temporary for lymphoma treatments, but varies from person to person and treatment to treatment. He doesn't think I will get any permanent loss.

To test for this, I play timed games of sudoku, and I can see some increase in a running average (over last 10 games) times during treatment and slightly afterwards, but I have also seen return to pretreatment levels after that. I have even set new (single game) record low times after treatment, so overall trend does not appear to show any long term effect in this regard.

In recent discussions he noted that we could stop this treatment at 4 rounds, or continue for 6 rounds, with some improved possibility for a longer remission period before the next battle with the longer treatment.

We will get a cat-scan after the 4th round to see the net effect and make the decision then. My inclination is to stay the course for 6 rounds (ending November 15th rather than October 4th). Something to give thanks for.

Longer remission also means more chances for new therapies and greater possibly for an actual cure for my type of cancer (follicular lymphoma) -- especially if stem cell research is opened up to use undifferentiated fetal stem cells in transplants.

Not too surprisingly, I'll take every minute I can get.

This is an example of the kind of thing I am talking about in regards to potential new cures:

http://www.thedailybeast.com/...ffects-researchers-find.html

quote:
Instead of gaining insight into how cells function, Sanchez had stumbled upon the anti-cancer properties of THC. In 1998, she reported in a European biochemistry journal that THC “induces apoptosis [cell death] in C6 glioma cells,” an aggressive form of brain cancer.
...
A team of Spanish scientists led by Manuel Guzman conducted the first clinical trial assessing the antitumoral action of THC on human beings. Guzman administered pure THC via a catheter into the tumors of nine hospitalized patients with glioblastoma, who had failed to respond to standard brain-cancer therapies. The results were published in 2006 in the British Journal of Pharmacology: THC treatment was associated with significantly reduced tumor cell proliferation in every test subject.
...
Dr. Sean McAllister, a scientist at the Pacific Medical Center in San Francisco, has been studying cannabinoid compounds for 10 years in a quest to develop new therapeutic interventions for various cancers. Backed by grants from the National Institute of Health (and with a license from the DEA), McAllister discovered that cannabidiol (CBD), a nonpsychoactive component of the marijuana plant, is a potent inhibitor of breast cancer cell proliferation, metastasis, and tumor growth.

In 2007, McAllister published a detailed account of how cannabidiol kills breast cancer cells and destroys malignant tumors by switching off expression of the ID-1 gene, a protein that appears to play a major role as a cancer cell conductor.

The ID-1 gene is active during human embryonic development, after which it turns off and stays off. But in breast cancer and several other types of metastatic cancer, the ID-1 gene becomes active again, causing malignant cells to invade and metastasize.


Finding that specific genes are targeted by cannabinoids with positive results.

Please note how long the process takes to get from discovery to study to application in treatments. This can be a problem for those of us with an existing condition, and facing the prospect of not having years to wait for cures that are being researched and studied.

Also note that -- thanks to OBAMACARE -- people will no longer be refused insurance coverage due to a "pre-existing" condition ... and this stuff is expensive, very expensive.

ASGARA (and others fighting this battle):

See sections on tumor reductions, blood proteins and other beneficial effects. This is a very hopeful article for many, so you may want to share this information to friends and families (yes, even the religious and conservative types -- synthetic compounds (cannabinoids) remove the normal psychoactive effects -- and yes Buz, it is a natural organic cure). In many places cannabinoids can be prescribed.

For myself and my brothers, I also have to wonder how well it works on prostrate cancer, especially once it is metastasizing ... a whether it could have helped dad (the family history also includes dad's father dying from prostrate cancer ... albeit at 96 ... ).

I know that I would be interested in participating in a clinical study of the effect on blood cancers (lymphomas, leukemias, etc).

AND

I'd do it FOR SCIENCE !!! (of course).

Enjoy

Edited by RAZD, : clrty


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 296 by RAZD, posted 08-23-2012 10:28 AM RAZD has acknowledged this reply

Replies to this message:
 Message 298 by onifre, posted 09-09-2012 7:40 PM RAZD has responded

  
onifre
Member (Idle past 507 days)
Posts: 4854
From: Dark Side of the Moon
Joined: 02-20-2008


(1)
Message 298 of 304 (672590)
09-09-2012 7:40 PM
Reply to: Message 297 by RAZD
09-07-2012 11:02 PM


Re: another general update ... & information for ASGARA ... & what to look forward to
Finding that specific genes are targeted by cannabinoids with positive results.

What an fascinating discovery. Thanks for sharing this article. I will be sure to pass it on to other friends.

- Oni

Edited by onifre, : No reason given.


This message is a reply to:
 Message 297 by RAZD, posted 09-07-2012 11:02 PM RAZD has responded

Replies to this message:
 Message 299 by RAZD, posted 09-09-2012 7:48 PM onifre has responded

    
RAZD
Member
Posts: 19074
From: the other end of the sidewalk
Joined: 03-14-2004
Member Rating: 2.6


Message 299 of 304 (672593)
09-09-2012 7:48 PM
Reply to: Message 298 by onifre
09-09-2012 7:40 PM


Re: another general update ... & information for ASGARA ... & what to look forward to
Hi Onifre,

So you should be well inoculated eh?

Enjoy


we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 298 by onifre, posted 09-09-2012 7:40 PM onifre has responded

Replies to this message:
 Message 300 by onifre, posted 09-09-2012 7:58 PM RAZD has acknowledged this reply

  
onifre
Member (Idle past 507 days)
Posts: 4854
From: Dark Side of the Moon
Joined: 02-20-2008


(1)
Message 300 of 304 (672594)
09-09-2012 7:58 PM
Reply to: Message 299 by RAZD
09-09-2012 7:48 PM


Re: another general update ... & information for ASGARA ... & what to look forward to
Hey RAZD,

So you should be well inoculated eh?

I'm fighting cancer as we speak.

- Oni


This message is a reply to:
 Message 299 by RAZD, posted 09-09-2012 7:48 PM RAZD has acknowledged this reply

    
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